Updates From
Baby Delaney's
Mom and Dad
May 4, 2001
The Lord is wonderful! Today was a great day. When we went in for our 7-8:00 visit with Delaney the doctor came out while we were scrubbing and told us that there has been a change and he wanted to warn us before we went into the room. My heart dropped! Then he smiled and said she's doing so well right now at staying stable that he took her off the ventilator that she was on and put her on one that we start surgery on her burns. This was the step we've been waiting for. They put her on it at 10:30 this morning and so far she's doing great! Your prayers and GODS grace have gotten her this far so please continue to keep Delaney in your prayers. Some people have asked what her blood type is and how you go about donating blood for her. Her blood type is A+, you can do a direct donation if you are A+ or you can do a replacement donation in her name. Just tell them who it is for and that she is at Parkland Hospital, Dallas, Texas. This should be all the information they need. Around the Houston area you can donate at the Gulf Coast Regional Blood Center or the Dallas area at Carter Blood Centers. Scott & White will not take replacements or directed units the blood you donate there stays there for their hospital. You can call 1-888-GVBLOOD to get a location near you. Thank you all again. We are very BLESSED to have family and friends like all of you. I have faith I will be writing more good news tomorrow!!!!!!
May 6, 2001
Well today is Sunday and I am very sorry I didn't update last night. We've had a busy weekend. Delaney is still progressing very well. She is now at 55% oxygen and holding her own. The burns on her face has healed and the scabs have fallen off, they look great. Of coarse where the burns were it is dark pink, but I'm sure it will fade with time. The nurse told me there are some areas that are healing up that they thought would need skin graphs and probably won't now. They are small areas but we'll take what we can get. They said surgery next week some time towards the end maybe Friday. One of the nurses said she's doing so well that she can't see them waiting that long. She's really going to need the prayers when surgery starts. They said she will take a dive after a surgery and to expect it. If she is burned 35% of her body and they have to take skin from 15% of her body then that's 50% that has to heal. Which of coarse is harder on that little body. She has come so far and has had so many people praying for her that I am very confident that she will breeze right through it all. She's a strong, tough and courageous little girl, her daddy and I are very proud. Her sister and brother came down this weekend and it was so wonderful to see them. We miss them so very much. Caitlyn was able to talk to the counselor at the hospital and she took Caitlyn in to see Delaney. She did very well. There were rumors around where we live that Delaney had to have both arms amputated and Caitlyn heard about it, so she had to see for herself that it wasn't true. Caitlyn is a real trooper. Clayton, our 3 yr. old doesn't really say or ask much. He says he can't wait for HIS Delaney to come home. With all the prayer and our trust in the LORD, it will happen real soon. Thanks and GOD BLESS, Deana and Deven
May 7, 2001
Today was a good day. She was doing so well that they lowered her oxygen to 50% and decided to take her off the paralyzing medication. We are not to sure about this due to the fact she will be waking up and wanting Mommy. We wont be able to hold her yet. This is going to kill Mom. We saw her at the last visit and she was moving her mouth and tongue, and made a few sounds. We are wondering if she will be awake in the morning. They plan on surgery Friday if all stays well. This is going to be a trying time for her. We will let everyone know if they change the date. Keep the prayers coming and we will update you tomorrow. Thanks, Deven
May 8, 2001
O.K. I think things are starting to go a little faster than what we expected. Don't get me wrong we are happy, we just were not expecting all that happened today. Today Delaney was taken off another medication(medication that kept her relaxed), her oxygen level was lowered to 40% and she tried opening her eyes. While the doc. was fixing her trac. she let out a cry. Tomorrow she should be more alert. Thank you everyone for all your prayers, support, and love. Someone asked if Delaney can listen to tapes, she does have a tape player in her room. GOD continues to answer all our prayers and to him we give thanks for Delaney's healing. Love, Deven and Deana
May 10, 2001
We wanted to let everyone know that Delaney's surgery is at 0730 Friday morning. They plan on grafting her left arm and exploring her fingers to see what can be saved. She opened her eyes a little and cried when a friend of ours talked to her. She still doesn't move around much which makes it easier on the nurses. There is really not much more to pass on so we will let ya'll know tomorrow. Love, Deven & Deana
May 11, 2001
Well the first surgery is over and Delaney did very well. The surgery took little over an hour but they only grafted her left arm, left hand (top and palm), top of her left foot and they did have to remove part of her pinky (down to the knuckle) and part of her ring finger (just the tip) she still has her nail. He said we'll watch that ring finger to make sure no more needs to come off. He was real good about leaving even the littlest bit if he thought there would be a chance for it to heal. She used 150cc of blood during the surgery and they were going to check her blood count a little later to see if she needs anymore. If she heals well and stays stable then we'll probably have the second surgery next week. Then he will be grafting the chest and some small places on her right leg and arm. We were pleased to hear that he's almost certain that her breast buds were not burnt and she would not have any problems with developement. We'll cross that bridge when we get there. I can't thank everyone enough for all the prayers and support Deven and I have received. I truly believe that without the prayers things wouldn't have gone this well for our baby. One nurse told me that in all the years he's been there he has never seen a child that small with burns as severe as Delaneys recover as quickly as she has. When he told me that I knew the only reason why is because of THE LORD JESUS CHRIST. We'll be going in and making short visits throughout the day so if there are any changes I will inform everyone tonight. Thanks Again, Deana & Deven
May 14, 2001
We just don't know what to do with these good days but we will take them! Today they had her off the resperatior and on a trac brace ( mask that fits over the trac hole, doesn't breathe for her just provides her with oxygen )they have got her on 20 -30 minute trials. They also took her off the morphine drip and give it to her as needed. She seems to be doing very well with this. Her second surgery is scheduled for Friday if all stays well. They unwrapped the grafted areas today, there still mesh gauze on the grafts but the nurse said it looked good. They will know tomorrow when they take the mesh off if the grafts stuck. She will look around the room at us, moves her body a little, and she even watched a little t.v. today. We are very proud of her progress but they are still letting us know she can go down hill at any time. But she is stronger than that! Everyone is very optimistic. Well it is time to go and see her we will give her kisses from everyone. Thanks for the prayers. Love Deven & Deana
May 15, 2001
Today we've had a little set back. When they unwrapped the grafted areas the foot, arm and the palm of her hand looked great, but the top of her hand the the fingers did not take. The nurse said the skin graft did not stick and it just moves all around. They will go in and regraft it on friday when they do the chest and a little on the right arm the doctor said. Also the area that they took the skin from (donor site) instead of drying like it should her body is treating it like a second degree burn so they are having to wrap and apply medication on both of her thighs where they took the skin from. It's kind of a set back, which we were expecting, but that didn't mean we wanted it to happen! We are still thinking positive and pray the surgery on friday goes well. As far as her health they say everything is going great. We want to thank everyone who has donated blood and apologize if any of you got the run around at the hospitals or blood centers. You would think they would make it easier to donate blood for someone. We would like to send thank you cards to everyone could you please e-mail me your mailing addresses. GOD BLESS Deven & Deana
May 17, 2001
Well there's a lot to tell everyone. Yesterday they took her off the respirator and put her on the trac collar to see how long she could breathe without assistance. She is still of the trac collar. They can't believe how good she is doing. She is more alert and the nurses have fun with her at night. They said she didn't fall asleep till 12:00 am. I got to hold her for the first time today. It was an awsome feeling. She doesn't have much expression, but she sure was rooting around wanting to nurse so in went the pacifer! Surgery is tomorrow at around 0730. This surgery should be alot easier for her since she is stronger and there is less grafting. They are still worried about her breast buds being damaged and part of her ring finger needing to be removed. There have been a few nurses say if we forget to come get her they are taking her home with them. (those are fighting words!) Also some things we have been told, now that she is doing a whole lot better, is there wasn't much hope for her to have made it this far. Goes to show what the POWER OF PRAYERS and the GOOD LORD can do. We will let everyone know how surgery goes. Thank you all so much, Deven & Deana
May 19, 2001
It's Saturday and I'm sure a lot of you are wondering about the surgery so here it goes...........They ended up having to graft a little more than we expected. Her right foot (top), a strip around the top of her right arm, chest, re-grafted the couple of areas on her left arm and finger, and they did have to amputate her ring finger on her left hand to the first little knuckle. So she has no fingernails on her pinky and ring finger. Trying to ease the tension a little I said "I guess when she has her nails done they'll have to give her a discount!" When we told Caitlyn and Clayton about it Clayton just said "OH!" and Caitlyn said "I don't care abount her fingers being gone as long as I still have a sister." I was pretty impressed. They miss her so much. They put her back on the vintilator durning surgery and we had planned on her being on it for atleast the whole day and some of the next, but by the 5:00 visitation she was back on the trac collar and doing great. Today when I went in for the 3:00 visit they had the trac out and she is totally breathing on her own!!!! She cried and I could hear her. I feels like It's been ages since I heard her cry. I just rubbed her head and told her to cry it's ok. The only time she cries is when someone messes with her. Other times she just stares at us and follows us with her eyes around the room. I keep trying to make her smile so I can see those four teeth but she just won't do it yet. The nurses told us she probably wouldn't smile for a while. " When she's all better she'll let you know", they say. My mother-in-law was talking to the respitory doctor and she was telling him how she was our little miracle baby and he said she's a miracle baby three times over. He loves Delaney. He says she talks to him all the time so he lets us know what she says. He has been so wonderful to us and Delaney. They might take h er around in the wagon on Sunday. We'll see. She looks like the Stay Puff Marshmellow Man. They have her all wrapped up. It will all come off Monday or Tuesday so they'll be able to see how well the grafts look. Well I have to go to visit her. I'll talk to everyone tomorrow. Deana
May 22, 2001
I,m sorry I haven't updated in a couple of days but it's been something else around here. Saturday Deven had to go back to work. It was killing him but we have to pay the bills so he left and told me to call him after every visit. Nothing really changed on Saturday. Sunday however there were many. They had Delaney off the ventilator and on the mask, she was on the mask about two or three days and when I went in to visit her Sunday they had taken the trac out and she was breathing on her own. I was shocked because I didn't think they were going to do that until they checked out the grafts to make sure they took. They seemed pretty confident about everything so I just went with the flow. Then they told me they were going to try her with a bottle and if she did well then I could try to nurse her. I couldn't believe it. She took the bottle just fine and she didn't forget how to nurse! Yesterday was more amazing! It's a good thing everyone is setting down because when I got there for the 8:00 visit they had her all dolled up with a bow in her hair looking all clean and the big bulky bandages off (she looked like a little angel) her bright blue eyes were shining. The doctor came in and said you know she's going to be moved down the hall tomorrow. I asked if he was joking and he said no I'm not joking. I think my jaw fell to the ground because once they get moved down the hall they get to go home after 2-3 days!!!! So were looking at probably Saturday! Deven's mom started to cry from joy but I stood there in total amazment. I haven't been able to cry, laugh, smile or anything . All I can think is less than a month ago I didn't think I would have a baby anymore, Deven and I were giving her to the LORD because we knew she was so bad and in so much pain and in less than a month she's going home. It's just too much to grasp all at one time. I know that little girl has seen JESUS and played with the angels while her body healed there's no doubt about that. She is our littlemiracle baby and GOD has something special planned for her. Today, Tuesday, at the 8:00 a.m. visit they had the feeding tube out of her nose and she's eating baby food (they even ordered some ice cream for her today) and they took the cathadere out. All she has left to take out is the I.V. and that will probably be today. She is taking all meds by mouth. They are not going to move her out of ICU today like planned because there isn't a room avalible but the nurse don't mind a bit. They want her to stay there. All of this would not have happened without the wonderful prayers from everyone. We just can't thank everyone enough. They unwrapped her left hand and arm today and it was real hard to look at it. It looks pretty bad. To the nurses and doctors it looks good but to me it was bad. I know it's all going to heal and she'll do great in life but she's my baby and right now it's hard. All of the grafts took very well so there will be no more surgeries any time soon. Plus today she got to go on that wagon ride we've been waiting on! Deven came back last night and he was here to take her on that ride. It meant more to him than anyone can imagine. Thank You All for all the love and support. I will be staying here when she gets out of the hospital for at least three weeks for intense therapy. She'll have to go five days a week. Then it will start to tapper off there. Thanks again. Deana
June 2, 2001
O.K. I'm going to try this again. I have written three e-mails and none have gone through to anyone. For those of you that don't know already, Delaney is out of the hospital. She is doing so well. She was released a week ago this past friday. It was a real shocker. They took her out of ICU on a wednesday and put her in the acute care unit and by friday she was released. This past Thursday we took her to the burn clinic and the doctors just couldn't believe how she looked. All we can say is it's the work of the LORD no doubt!!!!! She is smiling, laughing, playing and being as cute as can be. I know we have told everyone thank you but we can't say it enough. If it wasn't for all the thoughts, love and prayers I know she wouldn't have done so well so fast. Caitlyn and clayton are doing so well with her. At first Caitlyn wanted to hide Delaney's hand and I told her we can't do that, we have to let Delaney know it's o.k. and nothing to be ashamed of. After a while of thinking about it Caitlyn said "Your right, she's alive and that's all that matters." I was so proud. Clayton said her hand looked nasty and he wasn't going to touch it. I told him it's o.k. he didn't have to. A couple of days later he kissed it and told her he loved her. Now none of it's a big deal to either. When we do therapy on it of coarse Delaney screams so they both come into the room and sing, dance and make silly sounds to her to get her mind off what we're doing. They are a big help. We are battling the insurance company about thr right kind of therapy she needs. They don't have a pediatric burn therapist in the insurance group and want to send her to a plastic surgeon. Monday and Tuesday we are going to Scott and White to talk to them more about the insurance and then we will be going back to Tyler for more therapy there. I really like the therapist there. Plus we are able to stay with Deven's parents. His mom is out of school for the summer and she is loving having the grandkids there. Poor Delaney has a long road ahead of her. There is going a lot more surgeries and a lot of therapy, but we'll get through it all just fine. I'll tell you what, this has really made Deven and I rethink how we want to live our lives with our childern. Deven's going to cut down on work hours, if there's a fair in town we're taking the kids, we're going on vacations, there's so much we want to change. It's going to be interesting. I'll let everyone know how this next week goes. Love, Deana
June 26, 2001
Just wanted to let everyone know how well Delaney is doing. She is going to therapy everyday. Her burns are healing very well. This past Friday Deven and I took her to Dallas for a check-up and they were amazed at how well she looked. They said she will have minimal scaring. Everyday she wears her pressure garments. These are to help smooth out the skin grafting and help her heal even better. She wont crawl yet but we are working on that everyday. She most likely will have to have surgery on her left hand because the skin is too tight and her fingers are curving downward. It looks like her middle finger and ring finger are trying to web together so that will also have to be fixed. But we are hanging in there and could never had made it this far without all of everyones support. Thank you all so very much for continuing to keep us in your prayers. God is soo wonderful and we will never forget that and Delaney will grow up to know that always. Thank you all very much. Love, Deana and Deven
July 10, 2001
Deven and Deana do not have access right now to a computer as they are living with a family that does not have one. They are waiting on their house being built and Deana continues to take Delaney every day back and forth from Lampasas to Temple. We need prayers for Deana, Deven, Clayton and Caitlyn now, as they are suffering from the aftershocks of this horrible accident. Delaney continues to heal and progress well, but she absolutely abhors her physical therapy and occupational therapy. We are told she will not remember any of this, but when ones baby screams and cries when her affected areas are touched and looks at her Momma like "How could you do this to me?" It has an affect on us all. They still have many long days ahead with her therapy, but we know God will continue to meet the needs of this precious family. Thank you for all you have done! Baby Delaneys Grandmother, Karen Parrish
July 19, 2001
I just finished talking to Deana, Delaney's Mom and she said the surgeon said he wants to do more skin grafting on her hand as it is causing her thumb to pull in. They can't do that though until the hand is completely healed. The most recent blessing is that she is no longer screaming and crying when they do the therapy, she just kind of makes loud noises to tell them to "stop messing with me". Ha! We still need prayer for two areas: She has lost weight as she only wants bottles, no solid food and she isn't sleeping through the night since the accident. We are taking Clayton and Caitlyn to Springfield, Missouri on Saturday to see their Uncle Adam and Aunt Sarah, which will give Deana and Deven a little break, as well as the kids a few less trips to Scott and White. Thank you for your continuing prayers, we truly appreciate them. Hopefully they will be in their house in the next 3-4 weeks.God Bless You All! Baby Delaneys Grandmother, Karen Parrish
July 25, 2001
The doctor's have decided that she will have 3 surgeries when she is completely healed. Two on her hand and one on the bend of her elbow. She continues to thrive and has already outgrown her first body suit. I mentioned that she only wants her bottle last update, but now she is wanting only people food, not baby food. She has 6 teeth now and pushes all of her food to the front of her mouth so she can chew it. One of the beautiful things that has happened is Deana was worried about people's reaction to her in the store....well, Deana can hardly get out of any store because people stop and ask her what happened. Deana said when they stare......Delaney breaks out in her smile and that eases the tension and then they usually ask what her injuries are. It is a slow uphill walk, but God's faithfulness to her cannot be denied. Thank you for your continued prayers. We serve an awesome God! Grammy Parrish
August 2, 2001
Deven and Deana took Delaney to Parkland hospital for her monthly check with them. Scott and White Hospital, who are their insurance provider does not recognize Parkland as her health provider, so Deven and Deana pay these visits out of pocket. These persons at Parkland are the true burn specialists and have decided as of today Delaney needs surgery on her hand by the end of the month. Her elbow also needs straightening, however,they want to cast her arm and see if it will straighten with that procedure. They did not anticipate this surgery this soon, but because she is growing so fast, as only those little ones do, the surgery is indicated now.Our prayer is that Parkland will have a short persuasion time with Scott and White to have Delaney's surgery done by Parkland. This is so important because they are the experts at Parkland and this is their field of expertise. Deven and Deana also took Delaney by the ICU where she was for the first 3 weeks, and the male nurse who admitted her was there this time. He got tears in his eyes when he saw her and all of the other nurses said, "They will never forget those blue eyes". It means so much to the nurses who minister to these critically injured children to see them healing, smiling and growing. Again, we say thank you for your prayers and concerns, because this is what has held us all together the past 4 months. Deana and Deven are hoping to be into their house in the next 3 weeks. Pray also that things will go smoothly there, as anyone who has built a house knows the little hindrances that have a way of creeping up. Grammy Parrish
August 3, 2001
Hi everyone. I'm at my moms and using her computer so I figured I'd update everyone on Delaney. She's just as happy as can be. Always smiling, laughing and keeping me on my toes. She hasn't let any of this slow her down. We still go to therapy everyday. That does get a little hard on all of us but we know how important it is so we make the best of it. It is getting a lot easier. I know there were some people worried about me but I'm letting everyone know that I am just fine. I'm not going to crack or break down and go crazy like some might think and I don't need to be on medication. HA! I have days that I break down and CRY along with Delaney when I'm doing therapy or changing her garments because it hurts her therefore it hurts me! I think it's only natural that I do hurt with her and I would be worried about someone that didn't cry for their hurting child. I involve the other two children in everything and tell them everything we're told from the doctors. They are such a big help in therapy. They play and act goofy while the therapist are working on her. She loves it. As far as the house is concerned, that is something we started before this even happened to Delaney. We don't expect anyone to help us out. That was something Deven and I started together and we've had some help from our parents and a couple of friends. We are about 2-3 weeks away from being in it. So please don't think we're desperate and need the help. We are fine where we are at right now. We are staying with one of Deven's best friends and his wife and children. It is 6 miles from our house so we work on it every evening and his buddy Clayton (who we're staying with) has done all the electrical work and air conditioning for us. Please don't anyone worry about us. Deven and I have a very strong, open and loving marriage. We talk to each other all the time about how we are feeling and things that are going on with our lives and family. Right now we are just concentrating on our family and what needs to be done to make Delaney all better. As far as other surgeries go, we went to Dallas yesterday and the doctor that performed her other surgeries looked at her and they are very concerned about her hand and elbow. He says they would like to do surgery right away. They are afraid that her middle finger and little ring finger won't grow with the rest of them because the scar is so thick. The finger will not straighten out at all. Her elbow won't either. They put her elbow in a cast hoping to straighten it out a little so they can wait on surgery on the elbow until the scar matures. The finger can't wait and needs to be done by the end of the month. They are going to try to talk to the insurance about letting them do the surgeries in Dallas. We would feel a lot better about that because they did such a wonderful job the first time. Again please pray that we're able to go to dallas for her surgeries. I will let everyone know what we find out and when it will all take place. Thank you all again for all the wonderful e-mails, thoughts and prayers. God Bless, Deana
August 9, 2001
Hi I just wanted to let everyone know that Delaney's arm looks to be doing very well with the cast on. They removed the cast Tuesday and I was amazed at the softness of the scars and how straight the arm was. After a while of leaving it off you could tell it was wanting to drawl up again and was starting to get hard again. They made her another cast that we can take on and off as needed. Hopefully this will prevent her from needing surgery on that arm to soon. The finger and hand still need surgery right away. We are still waiting on the hospital and insurance co. to call. I put in an application at Shriners to see if they can take a look at her. I've heard they do wonderful work. I'll update as I get more information. Thanks, Deana
August 22, 2001
Great news! Delaney has been preapproved by Shriners Hospital. There is a Shriners Hospital in Austin, and they will drive out to Lampasas and pick Delaney up for her therapy, or will pay gas for Deana to drive her into Austin. We are hoping that she will fully approved by September 7 when her next surgery on her hand is scheduled. She has been wearing a cast on her left arm and not only is the arm incredibly straight, but the cast is smoothing out the burned areas! There is also a lotion called Demarkable made by Beauty Control that is causing the scarring to smooth out and return to normal color faster than anything they have used so far. Deana and Deven should be moving into their house in the next two weeks. God has truly worked miracles through this family and again, we can't say enough......thank you for your prayers, and may God bless each of you to overflowing measure.
September 3, 2001
They will spend their first night their tonight. 90% of the tile is in, kitchen cabinets are in, someone donated the second commode for their mudroom, Deana's sister and brother-in-law gave them 4 inside doors. They are all very tired, but so relieved to be in their house. We rejoice with them! Thank you all again for your prayers!
September 13, 2001
Just wanted to apologize for not updating recently. Deven and I have been really busy lately. We have finally moved into our home, just in time for Delaney's first birthday Sept. 1. Delaney has been doing soo well and she is sooo happy. She had surgery today the 13th of Sept. The surgery went extremely well. They took layers of skin from her groin areas and cut the palm of her hand to put some skin in that area. This will allow the skin to losen up and not be soo tight. Her arm is in a cast as this procedure begins to heal. Delaney was in surgery for 3 hours. They did more than what they anticipated, but the doctors say all went very well. Yesterday she started to crawl again for the first time since the accident. Since having this surgery I guess it will take some time before she tries to crawl again. We are just sooooo happy that she is doing soo well and is in good spirits. We are very happy to finally be in our own home. It is such a great relief. We do not have a home phone yet. The phone company has to do some line work first and we were told it could take up to a month. As soon as we get phone service we will let everyone know. Once again Deven and I wanted to thank everyone for their tremendous support and prayers. Once we get settled we will be sending out thank you cards. The cards just dont say enough how much we thank everyone. We will update as often as we can. GOD Bless everyone. Thank you all soo much, Deana and Deven Parrish and family
October 9, 2001
Delaney had her first visit at Shriner's in Galveston today. They said she looked great and Deana could discontinue the every day therapy at Scott and White in Temple. She has been doing this since June! They gave her some new anti-itching medicine, as Delaney has not had many full night sleeps because of the itching. They have also placed her on a high fiber, high calorie diet because burn victims lose muscle and bone the first year after the trauma. They also fit her with a new Jobst garment and splint for her hand. This is a huge answer to prayer for us because Scott and White was NOT meeting her needs. In fact the last surgery they did was not the correct procedure for burn patients today. However, this hospital would not admit to a lack of knowledge for pediatric burn care. Shriners will come and pick up Delaney and my daugher-in-law in Lampasas, take them to Galveston, put them up in a motel for the night and take them home the next day. They will have no more financial outlay! Praise God, He does take care of His little ones! Thank you again for all of your prayer and voices of inquiry and concern! God Bless You!.
October 11, 2001
Hi everyone, Well there's a lot to tell everyone. I guess that's what happens when it takes a month to get a phone line put out in the boonies and no one provides the Internet out here. Delaney is doing so wonderful. I know she's my child but that has got to be the most strongest and happiest baby I've ever seen. So many people can't get past that smile of hers to even see that she's burned. It is such a blessing. Another blessing is that We took her to Shriners in Galveston on Tuesday 10/09/01 and they were the most amazing group of people. We were there for 6 1/2 hrs. They showed me what to do and watch for so I can do therapy at home everyday instead of driving over an hour there and back everyday. I only have to take her to see the Drs. once a month in Galveston and they will come get us the night before and take us back the day after and pay for everything hotel and all. It was such a blessing for them to accept her and do all of this. Deven and I were starting to get a little worried about all of it because we've been paying $800-$1000 a month on co-pays, gas, food, meds and lotions. Shriners pays for everything. I'm not gonna know what to do with all the time I'm going to have. Yeah I do, spend it all with my babies!!!! Deven and I feel like a ton of bricks have been lifted off our shoulders. I know it was everyones thoughts and prayers. Thank you so much. I do have one more prayer to ask and that is will you please pray (if your not already) that Deven and I don't feel so much anger towards GOD. We are both having such mixed feeling right now. I thank GOD everyday that she is here and she's doing so well, but five min. later I'm so angery at him I just want to scream. I guess it's normal to feel this way but it sure hurts to have this kind of anger built up inside and I know it hurts him(GOD)as well. Thanks again, Deana Parrish
February 14, 2002
Just wanted to let everyone know how Delaney is doing. She is walking and into everything, she has turned into a very strong willed little girl. Totally different than the other two. She is a little bundle of joy. Her scars are starting to heal, there are some areas that are still pretty thick and red but the doctors at Shriners said when we go back in three months they should be almost healed. They really give us so much hope for our darling. We actually look forward to her visits. There is so much they already have planned to do for her. As soon as the scars are healed (not red) they will be able to go in and remove the thick ones. One of the nipples still have not come through. They said something is there, either a breast bud or the nipple. If it is the bud and the nipple is gone they said they will be able to tattoo an areola on and put a nipple on. You won't be able to tell the difference. They said the thickness of the fingers and the amputated ones will slinder down to almost normal. The coloring of the grafted areas are pretty much the normal color of her skin. You can still tell she's been burned, but if you see her from a distance it's not the first thing you see. She is still itching a lot. We try just about everything but sometimes it does no good. That does get hard. Shriners did tell us on our last visit (Feb.12) that she doesn't have to wear her pressure garments anymore. They said it is just so hard on her beca use she hates them so much and I'll be able to massage her so much more that we could do without. We were really happy to hear that. She would cry when I put it on and I'd still cry putting it on. Things will start getting better now, I know they will. I again want to thank everyone for continuing the prayers and cards for her. I keep them all in a big box. I can't wait for her to understand how many people were praying for her. She now tells everyone hi! wherever we go. It's really cute. Also if she's wearing a shirt that she can lift up, she will flash you. We can't get out of the stores without her flashing someone and then of coarse I have to explain what happened to them. I definitely don't discourage her from doing that. She's acts like she's proud of her boo boos and wants to show them off. Her sister and brother are doing really well. They still talk about the day it happened, but you can tell they're forgetting little bits at a time. They love to explain to other kids about what happened and what Shriners are going to do for their little sister. They go into such detail explaining, that the little kids look at them like why did I even ask? It's pretty neat. I just let them say whatever their little hearts desire. Well I'll update again soon. Thanks for wanting to be kept updated on her. If anyone doesn't want to be sent these letters please let me know. I just send the e-mail to everyone on our list from when we were at the hospital. Thanks again. Deana and Deven